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International Bureau for Epilepsy

WARNING: Please beware of email phishing scams

Phishing is a scam where fraudulent emails are sent to people in an attempt to trick them into revealing personal or financial information.
There appears to have been an increase in such emails targeting non-profit organisations such as patient associations. Today we have been notified of a number of emails being received that claimed to have been sent by a member of the IBE Executive Committee. These emails are fraudulent and have nothing to do with IBE.

When dealing with uninvited contacts from people or businesses, whether it’s over the phone, by mail, email, in person or on a social networking site, always consider the possibility that the approach may be a scam. Read more

Youth Team

Latest News

IBE Africa
1809, 2015

IE News: Issue 3 – 2015 : 31st International Congress Issue

The 31st International Epilepsy Congress was held in Istanbul, Turkey from 5th to 9th September 2015. This edition of IE News was published specially for the Congress. Although only two years, since our last International Congress, there is much we have achieved, and so we take [...]

1609, 2015

Epilepsy Research in the EU: 27th – 29th October 2015

State of the Art and Opportunities for the Future The event will gather together all EU-funded and currently ongoing research projects specifically focused on epilepsy. Several laboratories and research institutions in Europe are supported from the EU for research on the mechanisms of epileptogenesis and on [...]

2008, 2015

The Lancet Report (International Epilepsy Day 2015)

The Lancet published the following article. Volume 385, No. 9967, p482, 7 February 2015 A voice for people with epilepsy Feb 9, 2015, will be the first International Epilepsy Day—a collaborative effort between The International Bureau of Epilepsy (IBE) and the International League Against Epilepsy (ILAE) [...]

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Established in 1961, the International Bureau for Epilepsy (IBE) is an international organisation for national epilepsy organisations (IBE chapters) that exists to provide support for a strong global network, encourage the development of new chapters in underserved areas of the world, and to encourage communication and collaboration among all members so as to meet our mission and vision.

Our members are patient/family focused and driven organisations and we work collaboratively with our professional and government partners worldwide.

Our strategic priorities are to ensure that epilepsy is

recognised as a health priority worldwide; that the human and civil rights of people with epilepsy are enhanced and protected wherever they might live; that people with epilepsy are empowered to maximise quality of life; and that research into prevention, treatment, care and consequences of epilepsy are promoted.

We work to achieve these priorities through a range of programs including:

  • Public Information and Health Education
  • Advocacy
  • International Best Practice Exchange
  • Helping Build Communities of Care

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What is Epilepsy?

Epilepsy is one of the most common serious diseases affecting more than 50 million people globally. There are many difference causes for epilepsy including genetic disposition, head trauma or brain tumour.

Epilepsy affects almost every aspect in the life of the person diagnosed with the disease. For many people with epilepsy, the stigma attached to the disease is more difficult to deal with than the disease itself.

People with epilepsy have a 3-6 times greater risk of premature death. Many of the deaths from epilepsy could be prevented with appropriate medication and treatment.

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