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Ambassador for Epilepsy – List of Ambassadors R – Z
Rasmussen, Dr Theodore Ravnik, Dr Igor Rektor, Dr Ivan Reynolds, Prof EH Richens, Dr Alan Robb, Dr Preston Robinson, Dr Lenna-Belle Rodin, Dr EA Rodriguez, Dr Jorge Sanchez Roger, Prof J Ruberti, Prof Renato F Rubio-Donnadieu, [...]
IE News: Issue 3 – 2015 : 31st International Congress Issue
The 31st International Epilepsy Congress was held in Istanbul, Turkey from 5th to 9th September 2015. This edition of IE News was published specially for the Congress. Although only two years, since our last International Congress, there is much we have achieved, and so we take [...]
Epilepsy Research in the EU: 27th – 29th October 2015
State of the Art and Opportunities for the Future The event will gather together all EU-funded and currently ongoing research projects specifically focused on epilepsy. Several laboratories and research institutions in Europe are supported from the EU for research on the mechanisms of epileptogenesis and on [...]
The Lancet Report (International Epilepsy Day 2015)
The Lancet published the following article. Volume 385, No. 9967, p482, 7 February 2015 A voice for people with epilepsy Feb 9, 2015, will be the first International Epilepsy Day—a collaborative effort between The International Bureau of Epilepsy (IBE) and the International League Against Epilepsy (ILAE) [...]
Established in 1961, the International Bureau for Epilepsy (IBE) is an international organisation for national epilepsy organisations (IBE chapters) that exists to provide support for a strong global network, encourage the development of new chapters in underserved areas of the world, and to encourage communication and collaboration among all members so as to meet our mission and vision.
Our members are patient/family focused and driven organisations and we work collaboratively with our professional and government partners worldwide.
Our strategic priorities are to ensure that epilepsy is
recognised as a health priority worldwide; that the human and civil rights of people with epilepsy are enhanced and protected wherever they might live; that people with epilepsy are empowered to maximise quality of life; and that research into prevention, treatment, care and consequences of epilepsy are promoted.
We work to achieve these priorities through a range of programs including:
- Public Information and Health Education
- Advocacy
- International Best Practice Exchange
- Helping Build Communities of Care
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What is Epilepsy?
Epilepsy is one of the most common serious diseases affecting more than 50 million people globally. There are many difference causes for epilepsy including genetic disposition, head trauma or brain tumour.
Epilepsy affects almost every aspect in the life of the person diagnosed with the disease. For many people with epilepsy, the stigma attached to the disease is more difficult to deal with than the disease itself.
People with epilepsy have a 3-6 times greater risk of premature death. Many of the deaths from epilepsy could be prevented with appropriate medication and treatment.
