Annual Report 2013
When I took over the mantle of President at the time of the General Assembly on 26th June 2013, it was clear that I had some very large boots to fill. My predecessor, and now Immediate Past President, Mike Glynn, served IBE with dedication and hard [...]
IE News: Issue 2 – 2015
In this issue ... This issue of the magazine is a clear indication of how busy it has been in the last few months. More significantly, it also shows some very positive advances in the work of IBE to meet its goals. In the last magazine, [...]
22 July: World Brain Day 2015 devoted to epilepsy
EMBARGO 21 JULY9.00 a.m.CET 22 July: World Brain Day 2015 devoted to epilepsy “Epilepsy is more than seizures” – Global awareness-raising for the underestimated burden of epilepsy – 75-80 percent of people with epilepsy in low income countries do not have access to medication “Epilepsy is [...]
World Health Assembly Declaration on Epilepsy
WHO Declaration on the: Global burden of epilepsy and the need for coordinated action at the country level to address its health, social and public knowledge implications Download the Declaration
Established in 1961, the International Bureau for Epilepsy (IBE) is an international organisation for national epilepsy organisations (IBE chapters) that exists to provide support for a strong global network, encourage the development of new chapters in underserved areas of the world, and to encourage communication and collaboration among all members so as to meet our mission and vision.
Our members are patient/family focused and driven organisations and we work collaboratively with our professional and government partners worldwide.
Our strategic priorities are to ensure that epilepsy is
recognised as a health priority worldwide; that the human and civil rights of people with epilepsy are enhanced and protected wherever they might live; that people with epilepsy are empowered to maximise quality of life; and that research into prevention, treatment, care and consequences of epilepsy are promoted.
We work to achieve these priorities through a range of programs including:
- Public Information and Health Education
- Advocacy
- International Best Practice Exchange
- Helping Build Communities of Care
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What is Epilepsy?
![What is Epilepsy – Icon](https://www.ibe-epilepsy.org/wp-content/uploads/2016/04/What-is-Epilepsy-Icon.png)
Epilepsy is one of the most common serious diseases affecting more than 50 million people globally. There are many difference causes for epilepsy including genetic disposition, head trauma or brain tumour.
![What is Epilepsy – Icon](https://www.ibe-epilepsy.org/wp-content/uploads/2016/04/What-is-Epilepsy-Icon.png)
Epilepsy affects almost every aspect in the life of the person diagnosed with the disease. For many people with epilepsy, the stigma attached to the disease is more difficult to deal with than the disease itself.
![What is Epilepsy – Icon](https://www.ibe-epilepsy.org/wp-content/uploads/2016/04/What-is-Epilepsy-Icon.png)
People with epilepsy have a 3-6 times greater risk of premature death. Many of the deaths from epilepsy could be prevented with appropriate medication and treatment.