Latest News
Join the International Bureau for Epilepsy For A Celebration of Young People with Epilepsy
Living with epilepsy as a young person can be challenging, but you don't have to face it alone. IBE, along with our Global Youth Team, is pleased to announce an upcoming event scheduled for July 29th. This event offers a platform where you can [...]
Why is Epilepsy Different for Women? [Webinar Replay]
Being a woman with epilepsy is not the same as being a man with epilepsy. This is especially noticeable when a woman reaches childbearing age and becomes sexually active. Seizures can be influenced by the female hormones of oestrogen and progesterone, resulting in issues for [...]
NEW REPORT: Exploring Epilepsy and the Family
Exploring Epilepsy and the Family A Report from the Global Youth Team of the International Bureau for Epilepsy [IBE] on International Day of Families 2023. For young people with epilepsy, the role of family is crucial to support their development and allow them to reach [...]
VIRTUAL EVENT: Women and Epilepsy
The world of sexual development, menstruation, contraception, fertility, pregnancy and menopause is complex, but when you have epilepsy, there are extra issues you need to know about. Unfortunately, being a woman with epilepsy is not the same as being a man with epilepsy. On [...]
Established in 1961, the International Bureau for Epilepsy (IBE) is an international organisation for national epilepsy organisations (IBE chapters) that exists to provide support for a strong global network, encourage the development of new chapters in underserved areas of the world, and to encourage communication and collaboration among all members so as to meet our mission and vision.
Our members are patient/family focused and driven organisations and we work collaboratively with our professional and government partners worldwide.
Our strategic priorities are to ensure that epilepsy is
recognised as a health priority worldwide; that the human and civil rights of people with epilepsy are enhanced and protected wherever they might live; that people with epilepsy are empowered to maximise quality of life; and that research into prevention, treatment, care and consequences of epilepsy are promoted.
We work to achieve these priorities through a range of programs including:
- Public Information and Health Education
- Advocacy
- International Best Practice Exchange
- Helping Build Communities of Care
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What is Epilepsy?
Epilepsy is one of the most common serious diseases affecting more than 50 million people globally. There are many difference causes for epilepsy including genetic disposition, head trauma or brain tumour.
Epilepsy affects almost every aspect in the life of the person diagnosed with the disease. For many people with epilepsy, the stigma attached to the disease is more difficult to deal with than the disease itself.
People with epilepsy have a 3-6 times greater risk of premature death. Many of the deaths from epilepsy could be prevented with appropriate medication and treatment.
