Latest News
Participants Needed for Clinical Trial on Focal Epilepsy
Have you, or a family member, been diagnosed with focal epilepsy which is not currently fully controlled by medication? Are you based in the United States or Israel, and between the ages of 18 to 65? If so, you may wish to consider enrolling [...]
Launch of IBE E-Learning Modules
Today, on World Health Day, we are delighted to announce the launch of our new e-Learning module series. World Health Day (WHD), held every year on 7 April, marks the anniversary of the founding of the World Health Organization (WHO) in 1948, so it is [...]
Congratulations 2023 Award Winners
On behalf of the International League Against Epilepsy (ILAE) and the International Bureau for Epilepsy (IBE), it gives us great pleasure to announce the winners of the Lifetime Achievement Awards, the Social Accomplishment Award and the Ambassador for Epilepsy Awards 2023. All of the award [...]
ICHOM Launches Adult and Pediatric Epilepsy Set of Patient-Centered Outcome Measures
The launch of the ICHOM Adult and Pediatric Epilepsy Set of Patient-Centered Outcome Measures is a significant step towards improving the quality of care for epilepsy patients globally. By tracking outcomes and collecting data, healthcare providers can identify areas for improvement and make informed decisions to [...]
Established in 1961, the International Bureau for Epilepsy (IBE) is an international organisation for national epilepsy organisations (IBE chapters) that exists to provide support for a strong global network, encourage the development of new chapters in underserved areas of the world, and to encourage communication and collaboration among all members so as to meet our mission and vision.
Our members are patient/family focused and driven organisations and we work collaboratively with our professional and government partners worldwide.
Our strategic priorities are to ensure that epilepsy is
recognised as a health priority worldwide; that the human and civil rights of people with epilepsy are enhanced and protected wherever they might live; that people with epilepsy are empowered to maximise quality of life; and that research into prevention, treatment, care and consequences of epilepsy are promoted.
We work to achieve these priorities through a range of programs including:
- Public Information and Health Education
- Advocacy
- International Best Practice Exchange
- Helping Build Communities of Care
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What is Epilepsy?
Epilepsy is one of the most common serious diseases affecting more than 50 million people globally. There are many difference causes for epilepsy including genetic disposition, head trauma or brain tumour.
Epilepsy affects almost every aspect in the life of the person diagnosed with the disease. For many people with epilepsy, the stigma attached to the disease is more difficult to deal with than the disease itself.
People with epilepsy have a 3-6 times greater risk of premature death. Many of the deaths from epilepsy could be prevented with appropriate medication and treatment.
