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Children with epilepsy – families tell their stories
Children with epilepsy – families tell their stories” are four films recently published by The Norwegian Epilepsy Association. The films are made by Elisabeth Aspelin og Halvor Nittteberg. They are film producers and parents to a young boy with epilepsy. Elisabeth and Halvor have produced the [...]
IE News: Issue 1 – 2015
Download IE News : CLICK HERE In this issue IE News: Issue 1 – 2015 Dear Readers It's been a great few months and, although there have been long hours spent in preparation by IBE and ILAE at leadership level and by IBE and ILAE member [...]
Request to oppose the European Citizen’s Initiative “Stop Vivisection”
The ILAE and IBE Executive Committees, the AES-ILAE Translational Research Task Force, and the Neurobiology Commission of the ILAE have sent a letter of response to the members of the European Parliament to oppose the March 3rd, 2015, European Citizens Initiative Stop Vivisection. This initiative, which [...]
UCB leads epilepsy Hackathon
UCB leads epilepsy hackathon to support patient needs through digital tools and services On 24-26th April, 2015, developers, designers and epilepsy experts (doctors and patients) will come together at two simultaneous hackathons in Brussels, Belgium and Atlanta, US. The Goal To build innovative new digital [...]
Established in 1961, the International Bureau for Epilepsy (IBE) is an international organisation for national epilepsy organisations (IBE chapters) that exists to provide support for a strong global network, encourage the development of new chapters in underserved areas of the world, and to encourage communication and collaboration among all members so as to meet our mission and vision.
Our members are patient/family focused and driven organisations and we work collaboratively with our professional and government partners worldwide.
Our strategic priorities are to ensure that epilepsy is
recognised as a health priority worldwide; that the human and civil rights of people with epilepsy are enhanced and protected wherever they might live; that people with epilepsy are empowered to maximise quality of life; and that research into prevention, treatment, care and consequences of epilepsy are promoted.
We work to achieve these priorities through a range of programs including:
- Public Information and Health Education
- Advocacy
- International Best Practice Exchange
- Helping Build Communities of Care
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What is Epilepsy?
Epilepsy is one of the most common serious diseases affecting more than 50 million people globally. There are many difference causes for epilepsy including genetic disposition, head trauma or brain tumour.
Epilepsy affects almost every aspect in the life of the person diagnosed with the disease. For many people with epilepsy, the stigma attached to the disease is more difficult to deal with than the disease itself.
People with epilepsy have a 3-6 times greater risk of premature death. Many of the deaths from epilepsy could be prevented with appropriate medication and treatment.
