Latest News
IE News: Issue 3 – 2014
Download Issue 3 – 2014 CLICK HERE In This Issue: IE News: Issue 3 – 2014 66th REGIONAL COMMITTEE OF THE WHO WPR The World Health Organization Regional Committee for the Western Pacific took place in Manila in October to review WHO's work of the previous year and [...]
Mind Your Rights!
Mind Your Rights was first published in April 2014 by Youth on the Move. Mind Your Rights! is first and foremost an educational and informational tool on epilepsy, both as a medical condition and its socio-economic and cultural impacts. It provides information on the care framework [...]
Ice Bucket Challenge : Watch the video to find out if they’ve nominated YOU!
IBE and ILAE Presidents take the Ice Bucket challenge for Epilepsy
The Legislation Task Force
The Legislation Task Force is a Task Force established by the International Executive Committee (IEC) in April 2014. The Task Force works within the ambit of the policy framework set by the International Executive Committee and reports to the International Executive Committee. Members of the Legislation [...]
Established in 1961, the International Bureau for Epilepsy (IBE) is an international organisation for national epilepsy organisations (IBE chapters) that exists to provide support for a strong global network, encourage the development of new chapters in underserved areas of the world, and to encourage communication and collaboration among all members so as to meet our mission and vision.
Our members are patient/family focused and driven organisations and we work collaboratively with our professional and government partners worldwide.
Our strategic priorities are to ensure that epilepsy is
recognised as a health priority worldwide; that the human and civil rights of people with epilepsy are enhanced and protected wherever they might live; that people with epilepsy are empowered to maximise quality of life; and that research into prevention, treatment, care and consequences of epilepsy are promoted.
We work to achieve these priorities through a range of programs including:
- Public Information and Health Education
- Advocacy
- International Best Practice Exchange
- Helping Build Communities of Care
Sign Up to the IBE Newsletter
What is Epilepsy?
Epilepsy is one of the most common serious diseases affecting more than 50 million people globally. There are many difference causes for epilepsy including genetic disposition, head trauma or brain tumour.
Epilepsy affects almost every aspect in the life of the person diagnosed with the disease. For many people with epilepsy, the stigma attached to the disease is more difficult to deal with than the disease itself.
People with epilepsy have a 3-6 times greater risk of premature death. Many of the deaths from epilepsy could be prevented with appropriate medication and treatment.
