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Call for Nominations for the Asian and Oceanian Outstanding Achievement Epilepsy Award (AOEA) – 2014
Introduction The Asian and Oceanian Outstanding Achievement Epilepsy Award (AOEA) was introduced by the Commission of Asian and Oceanian Affairs (CAOA) of the ILAE in 2010. The purpose of the Award is to recognise and pay tribute to medical or non-medical professionals for their extraordinary [...]
ILAE Adopts An Operational Definition Of Epilepsy Intended To Be Used Clinically
The ILAE commissioned a Task Force to formulate an operational definition of epilepsy for purposes of clinical diagnosis. This article summarizes the recommendations of the Task Force, including appended notes and case examples explaining the reasons for these recommendations and occasional dissenting views. In December of [...]
Japanese Declaration on Epilepsy : 2013
Epilepsy is a well-known disease from ancient times, however people with epilepsy have many problems in their lives even today. Japan Epilepsy Association and Japan Epilepsy Society have been working together to get over these problems over the years. To encourage close liaison, there have been [...]
Epilepsy Research Priorities in Europe
Epilepsy Research Priorities in Europe : On Behalf of Epilepsy Advocacy Europe Joint Task Force of ILAE and IBE in Europe (2009 - 2013) : Emilio Perucca, Mike Glynn, Michel Baulac, Hanneke de Boer, Christian Elger, Reetta Kälviäinen, Ann Little, Janet Mifsud, Asla Pitkänen Summary The European [...]
Established in 1961, the International Bureau for Epilepsy (IBE) is an international organisation for national epilepsy organisations (IBE chapters) that exists to provide support for a strong global network, encourage the development of new chapters in underserved areas of the world, and to encourage communication and collaboration among all members so as to meet our mission and vision.
Our members are patient/family focused and driven organisations and we work collaboratively with our professional and government partners worldwide.
Our strategic priorities are to ensure that epilepsy is
recognised as a health priority worldwide; that the human and civil rights of people with epilepsy are enhanced and protected wherever they might live; that people with epilepsy are empowered to maximise quality of life; and that research into prevention, treatment, care and consequences of epilepsy are promoted.
We work to achieve these priorities through a range of programs including:
- Public Information and Health Education
- Advocacy
- International Best Practice Exchange
- Helping Build Communities of Care
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What is Epilepsy?
Epilepsy is one of the most common serious diseases affecting more than 50 million people globally. There are many difference causes for epilepsy including genetic disposition, head trauma or brain tumour.
Epilepsy affects almost every aspect in the life of the person diagnosed with the disease. For many people with epilepsy, the stigma attached to the disease is more difficult to deal with than the disease itself.
People with epilepsy have a 3-6 times greater risk of premature death. Many of the deaths from epilepsy could be prevented with appropriate medication and treatment.
