Latest News
IBE Rejoins EFNA
After a break of some years, IBE has recently renewed its membership of the European Federation of Neurological Associations (EFNA). EFNA is a federation of European umbrella organisations of neurological lay advocacy groups that facilitates collaboration with other associations in the field of neurology, including the [...]
IE News: Issue 2 – 2013
Welcome to the latest issue of IE News - the first issue under the wings of the new International Executive Committee and also the first issue for me as Editor. I have big shoes to fill and I hope that I can do justice to what [...]
Make A Donation – Solidarity Fund
IBE Solidarity Fund The IBE Solidarity Fund allows IBE to support members in developing countries to play an active role in the activities of IBE, where lack of available funds would otherwise prevent this. When IBE’s new constitution was put in place on 1st January 2005, many associations found that [...]
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Established in 1961, the International Bureau for Epilepsy (IBE) is an international organisation for national epilepsy organisations (IBE chapters) that exists to provide support for a strong global network, encourage the development of new chapters in underserved areas of the world, and to encourage communication and collaboration among all members so as to meet our mission and vision.
Our members are patient/family focused and driven organisations and we work collaboratively with our professional and government partners worldwide.
Our strategic priorities are to ensure that epilepsy is
recognised as a health priority worldwide; that the human and civil rights of people with epilepsy are enhanced and protected wherever they might live; that people with epilepsy are empowered to maximise quality of life; and that research into prevention, treatment, care and consequences of epilepsy are promoted.
We work to achieve these priorities through a range of programs including:
- Public Information and Health Education
- Advocacy
- International Best Practice Exchange
- Helping Build Communities of Care
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What is Epilepsy?
Epilepsy is one of the most common serious diseases affecting more than 50 million people globally. There are many difference causes for epilepsy including genetic disposition, head trauma or brain tumour.
Epilepsy affects almost every aspect in the life of the person diagnosed with the disease. For many people with epilepsy, the stigma attached to the disease is more difficult to deal with than the disease itself.
People with epilepsy have a 3-6 times greater risk of premature death. Many of the deaths from epilepsy could be prevented with appropriate medication and treatment.
