Latest News
Research Task Force : Act Local! Think Global!
The IBE Research Task Force presented an interesting workshop at the 30th International Epilepsy Congress, which took place in Montreal in June 2013. The interactive session looked at successful research projects carried out by IBE members associations, how they were developed, how they were introduced and, [...]
Joint Task Force
The Joint Task Force was created in mid‐2011 in order to co‐ordinate the efforts of IBE & ILAE to advance the epilepsy cause in Europe in respect of awareness and research particularly within the European Union. Overview Primary Mission The primary mission of EAE is to [...]
Annual Report 2011
Annual Report from the International Bureau for Epilepsy for the year ended 2011. The report focuses on the challenges and achievements of 2011, to quote IBE President Mike Glynn " The past year has been a very busy year for the IBE, a year of great [...]
Annual Report 2009
The IBE Annual Report for 2009 is now in circulation. The 20-page report carries information on the principal activities carried out by IBE during 2009 at an international level. The annual report also reports on the successful regional congresses in Dubai, Cartagena, Porto and Melbourne. You [...]
Established in 1961, the International Bureau for Epilepsy (IBE) is an international organisation for national epilepsy organisations (IBE chapters) that exists to provide support for a strong global network, encourage the development of new chapters in underserved areas of the world, and to encourage communication and collaboration among all members so as to meet our mission and vision.
Our members are patient/family focused and driven organisations and we work collaboratively with our professional and government partners worldwide.
Our strategic priorities are to ensure that epilepsy is
recognised as a health priority worldwide; that the human and civil rights of people with epilepsy are enhanced and protected wherever they might live; that people with epilepsy are empowered to maximise quality of life; and that research into prevention, treatment, care and consequences of epilepsy are promoted.
We work to achieve these priorities through a range of programs including:
- Public Information and Health Education
- Advocacy
- International Best Practice Exchange
- Helping Build Communities of Care
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What is Epilepsy?
Epilepsy is one of the most common serious diseases affecting more than 50 million people globally. There are many difference causes for epilepsy including genetic disposition, head trauma or brain tumour.
Epilepsy affects almost every aspect in the life of the person diagnosed with the disease. For many people with epilepsy, the stigma attached to the disease is more difficult to deal with than the disease itself.
People with epilepsy have a 3-6 times greater risk of premature death. Many of the deaths from epilepsy could be prevented with appropriate medication and treatment.
