Latest News
Results of Election of Members of the Regional Executive Committees for the term 2013-2017
[one_half] We are pleased to report the Results of the Election of Members to the Regional Executive Committees for the coming term 2013 – 2017 which commenced 26th June 2013. Click here to go directly to results [/one_half] [one_half last] [/one_half] Regional Executive Committees All members [...]
Facts about IBE
The International Bureau for Epilepsy (IBE) is a worldwide umbrella organisation, with a powerful global network of 122 members in 92 countries, providing a platform for the representation of epilepsy and promoting understanding and knowledge of the condition. IBE Members are lay organizations, with membership accessible [...]
Action Zone
ACTION ZONE – EDUCATING FOR A BETTER UNDERSTANDING OF EPILEPSY We regret that Action Zone is now out of production and therefore unavailable to order.
IE News: Issue 1 – 2013
IE News 50 Years In Print! When the late George Burden sat down to compose the first issue of the Bureau Newsletter, in the early days of January 1963, he did so on what was then “state of the art” equipment - a Remington manual typewriter. Corrections were made using a [...]
Established in 1961, the International Bureau for Epilepsy (IBE) is an international organisation for national epilepsy organisations (IBE chapters) that exists to provide support for a strong global network, encourage the development of new chapters in underserved areas of the world, and to encourage communication and collaboration among all members so as to meet our mission and vision.
Our members are patient/family focused and driven organisations and we work collaboratively with our professional and government partners worldwide.
Our strategic priorities are to ensure that epilepsy is
recognised as a health priority worldwide; that the human and civil rights of people with epilepsy are enhanced and protected wherever they might live; that people with epilepsy are empowered to maximise quality of life; and that research into prevention, treatment, care and consequences of epilepsy are promoted.
We work to achieve these priorities through a range of programs including:
- Public Information and Health Education
- Advocacy
- International Best Practice Exchange
- Helping Build Communities of Care
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What is Epilepsy?
Epilepsy is one of the most common serious diseases affecting more than 50 million people globally. There are many difference causes for epilepsy including genetic disposition, head trauma or brain tumour.
Epilepsy affects almost every aspect in the life of the person diagnosed with the disease. For many people with epilepsy, the stigma attached to the disease is more difficult to deal with than the disease itself.
People with epilepsy have a 3-6 times greater risk of premature death. Many of the deaths from epilepsy could be prevented with appropriate medication and treatment.
