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Notice to all Members
Results of Election of Members of the International Executive Committee for the term 2013-2017 We are pleased to report the Results of the Election of Members of the International Executive Committee for the coming term 2013 - 2017 which commences 26th June 2013. To review [...]
Issue 2 – 2012
Dear readers The second issue of IE News 2012 presents us with information on nine of the Promising Strategy projects funded this year. These are in the Latin American, South East Asian and Western Pacific regions. The last issue reported on the 11 initiatives to receive [...]
Issue 1 – 2012
I am sure that the moment you picked up this issue, you realised that something was different! To celebrate the 1st African Epilepsy Congress, we decided to include a special report on IBE in the African region. So you will be able to enjoy reading about the [...]
Promising Strategies Introduction
Background The International Bureau for Epilepsy (IBE) is committed to finding new and innovative solutions to the problems impacting people with epilepsy and their families world-wide. As part of this commitment, IBE is providing a limited amount of financial support to IBE member organizations on a [...]
Established in 1961, the International Bureau for Epilepsy (IBE) is an international organisation for national epilepsy organisations (IBE chapters) that exists to provide support for a strong global network, encourage the development of new chapters in underserved areas of the world, and to encourage communication and collaboration among all members so as to meet our mission and vision.
Our members are patient/family focused and driven organisations and we work collaboratively with our professional and government partners worldwide.
Our strategic priorities are to ensure that epilepsy is
recognised as a health priority worldwide; that the human and civil rights of people with epilepsy are enhanced and protected wherever they might live; that people with epilepsy are empowered to maximise quality of life; and that research into prevention, treatment, care and consequences of epilepsy are promoted.
We work to achieve these priorities through a range of programs including:
- Public Information and Health Education
- Advocacy
- International Best Practice Exchange
- Helping Build Communities of Care
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What is Epilepsy?
Epilepsy is one of the most common serious diseases affecting more than 50 million people globally. There are many difference causes for epilepsy including genetic disposition, head trauma or brain tumour.
Epilepsy affects almost every aspect in the life of the person diagnosed with the disease. For many people with epilepsy, the stigma attached to the disease is more difficult to deal with than the disease itself.
People with epilepsy have a 3-6 times greater risk of premature death. Many of the deaths from epilepsy could be prevented with appropriate medication and treatment.
