African Region: Bridging the gap
Click here to download this report. Epilepsy is responsible for an enormous amount of suffering. On the African continent it affects 10.000.000 people directly. They are of all ages, but especially within childhood, adolescence and the ageing population. Epilepsy provides the clearest example of a neurological [...]
Epilepsy in the Western Pacific Region: Call to Action
Click here to download this report. The burden of epilepsy in the Western Pacific Region of WHO is as extensive and serious as in any other region of the world. Epidemiological surveys in several countries have shown high incidence and prevalence of epilepsy, with high associated [...]
Epilepsy in the WHO South East Asian Region – Bridging the gap
Click here to download this report. Epilepsy affects about 1% of the population of the South-East Asia Region of WHO thus there are approximately 15 million people with epilepsy in the Region. Despite global advances in modern medicine, epilepsy continues to be surrounded by myths and [...]
Epilepsy in the WHO – Fostering Epilepsy Care in Europe
Click here to download this report. In Europe, at least 6 million people have epilepsy, and 15 million Europeans will have one seizure at some time in their lives. Nevertheless, in some countries of Europe, epilepsy is not recognized as a brain disorder, and up to [...]
Established in 1961, the International Bureau for Epilepsy (IBE) is an international organisation for national epilepsy organisations (IBE chapters) that exists to provide support for a strong global network, encourage the development of new chapters in underserved areas of the world, and to encourage communication and collaboration among all members so as to meet our mission and vision.
Our members are patient/family focused and driven organisations and we work collaboratively with our professional and government partners worldwide.
Our strategic priorities are to ensure that epilepsy is
recognised as a health priority worldwide; that the human and civil rights of people with epilepsy are enhanced and protected wherever they might live; that people with epilepsy are empowered to maximise quality of life; and that research into prevention, treatment, care and consequences of epilepsy are promoted.
We work to achieve these priorities through a range of programs including:
- Public Information and Health Education
- Advocacy
- International Best Practice Exchange
- Helping Build Communities of Care
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What is Epilepsy?

Epilepsy is one of the most common serious diseases affecting more than 50 million people globally. There are many difference causes for epilepsy including genetic disposition, head trauma or brain tumour.

Epilepsy affects almost every aspect in the life of the person diagnosed with the disease. For many people with epilepsy, the stigma attached to the disease is more difficult to deal with than the disease itself.

People with epilepsy have a 3-6 times greater risk of premature death. Many of the deaths from epilepsy could be prevented with appropriate medication and treatment.