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Issue 4 – 2011
ISSUE 4 – 2011 In this issue of IE News I wish, firstly, to congratulate the winners of the IE News Jubilee Award. The winning article, written by two distinguished Brazilian professionals, shows us the risk of sudden and social death regarding epilepsy. The judging panel [...]
Issue 3 – 2011
ISSUE 3 – 2011 The third issue of IE News 2011 features an extensive report on the roundtable event held in Brussels in November at the European Parliament. The meeting was attended by a number of MEPs, by the IBE/ILAE Epilepsy Advocacy Europe Joint Task Force, [...]
Issue 2 – 2011
The second issue of IE News 2011 includes interesting issues for our readers. We are still excited by the recent celebration of the IBE Jubilee in Rome, and you will find some news on this in the magazine. We also have to suggest you to read [...]
Epilepsy and Driving Task Force
Driving regulations for people with epilepsy vary enormously from country to country (and even within some countries) and within regions of the world. There are also many countries that have no regulations or have blanket bans on driving for persons with epilepsy. It can often be [...]
Established in 1961, the International Bureau for Epilepsy (IBE) is an international organisation for national epilepsy organisations (IBE chapters) that exists to provide support for a strong global network, encourage the development of new chapters in underserved areas of the world, and to encourage communication and collaboration among all members so as to meet our mission and vision.
Our members are patient/family focused and driven organisations and we work collaboratively with our professional and government partners worldwide.
Our strategic priorities are to ensure that epilepsy is
recognised as a health priority worldwide; that the human and civil rights of people with epilepsy are enhanced and protected wherever they might live; that people with epilepsy are empowered to maximise quality of life; and that research into prevention, treatment, care and consequences of epilepsy are promoted.
We work to achieve these priorities through a range of programs including:
- Public Information and Health Education
- Advocacy
- International Best Practice Exchange
- Helping Build Communities of Care
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What is Epilepsy?
Epilepsy is one of the most common serious diseases affecting more than 50 million people globally. There are many difference causes for epilepsy including genetic disposition, head trauma or brain tumour.
Epilepsy affects almost every aspect in the life of the person diagnosed with the disease. For many people with epilepsy, the stigma attached to the disease is more difficult to deal with than the disease itself.
People with epilepsy have a 3-6 times greater risk of premature death. Many of the deaths from epilepsy could be prevented with appropriate medication and treatment.
