Latest News
Issue 1 – 2011
In the two years that have passed since the General Assembly that was held in Budapest in 2009, the objectives of IE News have essentially remained the same. In other words, it is an important medium of news and information for all IBE members, the public, [...]
Euro Report press release
WHO and international epilepsy organisations expose unacceptable state of epilepsy care across Europe New report provides recommendations to improve the quality of care and understanding of epilepsy, and reduce stigmatisation to help bring epilepsy out of the shadows [8.00am CET, 26 August, Porto, Portugal] The World [...]
European Epilepsy Report
EMBARGO: the Fostering Epilepsy Care in Europe report and its contents are embargoed until 9am Central European Time on Thursday 26th August 2010. Epilepsy in the WHO European Region Global Campaign Against Epilepsy landmark report to be launched on 26th August in Porto The International Bureau [...]
Issue 4 – 2010
It has been a great and delightful summer here in the Southern Hemisphere, but it is now ending and, of course, the holiday season is also coming to a close. First of all I would like to welcome you to this new design of IE News. [...]
Established in 1961, the International Bureau for Epilepsy (IBE) is an international organisation for national epilepsy organisations (IBE chapters) that exists to provide support for a strong global network, encourage the development of new chapters in underserved areas of the world, and to encourage communication and collaboration among all members so as to meet our mission and vision.
Our members are patient/family focused and driven organisations and we work collaboratively with our professional and government partners worldwide.
Our strategic priorities are to ensure that epilepsy is
recognised as a health priority worldwide; that the human and civil rights of people with epilepsy are enhanced and protected wherever they might live; that people with epilepsy are empowered to maximise quality of life; and that research into prevention, treatment, care and consequences of epilepsy are promoted.
We work to achieve these priorities through a range of programs including:
- Public Information and Health Education
- Advocacy
- International Best Practice Exchange
- Helping Build Communities of Care
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What is Epilepsy?
Epilepsy is one of the most common serious diseases affecting more than 50 million people globally. There are many difference causes for epilepsy including genetic disposition, head trauma or brain tumour.
Epilepsy affects almost every aspect in the life of the person diagnosed with the disease. For many people with epilepsy, the stigma attached to the disease is more difficult to deal with than the disease itself.
People with epilepsy have a 3-6 times greater risk of premature death. Many of the deaths from epilepsy could be prevented with appropriate medication and treatment.
