Latest News
Issue 3 – 2010
Dear Friends In this issue of IE News there is emphasis on the two congresses, in Cartagena and Porto, that have taken place since the last issue. The meeting in Cartagena was a huge success with more than 600 delegates attending. During the congress a very [...]
Two new associate members join IBE!
IBE is delighted to announce that two new members have joined the organisation. National Society for Epilepsy (United Kingdom) is a new associate member in the European Region, which brings the number of members to 35 Full Members and 18 Associate Members in this region. Epilepsy [...]
New associate member in Europe!
IBE would like to welcome our new Associatel Member in the European region: National Society for Epilepsy (United Kingdom) This brings the number of members in European region to 35 Full Members and 18 Associate Members. IBE wishes this new member every success in the future.
Issue 2 – 2010
Dear Friends: In the Southern Hemisphere we are starting the rainy season and in Chile, two months after the terrible earthquake and its aftershocks, things are gradually beginning to improve for the many thousands of people who lost their homes. In this issue of IE News [...]
Established in 1961, the International Bureau for Epilepsy (IBE) is an international organisation for national epilepsy organisations (IBE chapters) that exists to provide support for a strong global network, encourage the development of new chapters in underserved areas of the world, and to encourage communication and collaboration among all members so as to meet our mission and vision.
Our members are patient/family focused and driven organisations and we work collaboratively with our professional and government partners worldwide.
Our strategic priorities are to ensure that epilepsy is
recognised as a health priority worldwide; that the human and civil rights of people with epilepsy are enhanced and protected wherever they might live; that people with epilepsy are empowered to maximise quality of life; and that research into prevention, treatment, care and consequences of epilepsy are promoted.
We work to achieve these priorities through a range of programs including:
- Public Information and Health Education
- Advocacy
- International Best Practice Exchange
- Helping Build Communities of Care
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What is Epilepsy?
Epilepsy is one of the most common serious diseases affecting more than 50 million people globally. There are many difference causes for epilepsy including genetic disposition, head trauma or brain tumour.
Epilepsy affects almost every aspect in the life of the person diagnosed with the disease. For many people with epilepsy, the stigma attached to the disease is more difficult to deal with than the disease itself.
People with epilepsy have a 3-6 times greater risk of premature death. Many of the deaths from epilepsy could be prevented with appropriate medication and treatment.
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