Latest News
Issue 2 – 2009
Dear Friends Welcome to the lovely city of Budapest. You are going to find the usual interesting IE News content in this magazine included in your congress bag. We have recent reports from conferences in India and Zambia as well as a report on the work [...]
Indian Epilepsy Association Programs
The Indian Epilepsy Association, which was founded in 1971, has conducted valuable programs for the benefit of people with epilepsy. For more information about these programs, please click here.
Issue 1 – 2009
Dear Friends, We have now moved to 2009 and in the first issue of the year we are including exciting information on the names of those selected to receive the IBE/ ILAE congress awards, at the end of June, during the Opening Ceremony of the 28th International [...]
How to help children with epilepsy
A manual for mothers, families and teachers How to help children with epilepsy is a recent publication by the WHO Regional Office for the Eastern Mediterranean on epilepsy. The manual has been produced in Arabic for field testing in several countries of the Region. This manual [...]
Established in 1961, the International Bureau for Epilepsy (IBE) is an international organisation for national epilepsy organisations (IBE chapters) that exists to provide support for a strong global network, encourage the development of new chapters in underserved areas of the world, and to encourage communication and collaboration among all members so as to meet our mission and vision.
Our members are patient/family focused and driven organisations and we work collaboratively with our professional and government partners worldwide.
Our strategic priorities are to ensure that epilepsy is
recognised as a health priority worldwide; that the human and civil rights of people with epilepsy are enhanced and protected wherever they might live; that people with epilepsy are empowered to maximise quality of life; and that research into prevention, treatment, care and consequences of epilepsy are promoted.
We work to achieve these priorities through a range of programs including:
- Public Information and Health Education
- Advocacy
- International Best Practice Exchange
- Helping Build Communities of Care
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What is Epilepsy?
Epilepsy is one of the most common serious diseases affecting more than 50 million people globally. There are many difference causes for epilepsy including genetic disposition, head trauma or brain tumour.
Epilepsy affects almost every aspect in the life of the person diagnosed with the disease. For many people with epilepsy, the stigma attached to the disease is more difficult to deal with than the disease itself.
People with epilepsy have a 3-6 times greater risk of premature death. Many of the deaths from epilepsy could be prevented with appropriate medication and treatment.
