Facts about Epilepsy
What is Epilepsy? Epilepsy is a medical condition that produces seizures affecting a variety of mental and physical functions. It is also called a seizure disorder. When a person has two or more seizures, they are considered to have epilepsy. A seizure happens when a brief, [...]
Promising Strategies Program
Background The International Bureau for Epilepsy (IBE) is committed to finding new and innovative solutions to the problems impacting people with epilepsy and their families world-wide. As part of this commitment, IBE is providing a limited amount of financial support to IBE member organizations on a [...]
Solidarity Fund Acknowledgements
The concept of the IBE Solidarity Fund was introduced in recent years by Philip Lee, Immediate Past President, who saw it as a means of supporting IBE Members in developing countries, to enable them play an active role in IBEs activities, where lack of available funds [...]
Issue 1 – 2008
Issue 1 – 2008. This issue of the magazine has reports on and news about the activities of IBE Members in Taiwan, Hong Kong, Lithuania, New Zealand, Ireland and Uganda. There is a very interesting article on the high incidence of epilepsy caused by neurocysticerosis in [...]
Established in 1961, the International Bureau for Epilepsy (IBE) is an international organisation for national epilepsy organisations (IBE chapters) that exists to provide support for a strong global network, encourage the development of new chapters in underserved areas of the world, and to encourage communication and collaboration among all members so as to meet our mission and vision.
Our members are patient/family focused and driven organisations and we work collaboratively with our professional and government partners worldwide.
Our strategic priorities are to ensure that epilepsy is
recognised as a health priority worldwide; that the human and civil rights of people with epilepsy are enhanced and protected wherever they might live; that people with epilepsy are empowered to maximise quality of life; and that research into prevention, treatment, care and consequences of epilepsy are promoted.
We work to achieve these priorities through a range of programs including:
- Public Information and Health Education
- Advocacy
- International Best Practice Exchange
- Helping Build Communities of Care
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What is Epilepsy?
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Epilepsy is one of the most common serious diseases affecting more than 50 million people globally. There are many difference causes for epilepsy including genetic disposition, head trauma or brain tumour.
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Epilepsy affects almost every aspect in the life of the person diagnosed with the disease. For many people with epilepsy, the stigma attached to the disease is more difficult to deal with than the disease itself.
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People with epilepsy have a 3-6 times greater risk of premature death. Many of the deaths from epilepsy could be prevented with appropriate medication and treatment.